By Nico Phillips
Sep 24, 2013
One young adult with Spastic Cerebral Palsy grew in to adolescence seeing and feeling no way to get medical help for his condition once he wasn't a kid any more. What shocked him the most, though, was the impact he began to see had happened to
all the other adults with the same condition, not just himself alone. Their mid-aged experiences were even worse than his— not just pain and arthritis but also wheelchairs ... at 30 years old. Just for a start.
It became clear that the child side of worldwide CP treatment is the only side getting real universal attention, even though CP itself doesn't end with childhood.
So, that young adult decided he would gather a few of his friends who also are adults with Spastic Cerebral Palsy.
The idea was that working together, something might be done to show the global medical community that it should be treating adults with the same thoroughness as kids.
That small group of Spastic Cerebral Palsy adults then banded together with a few professional film-makers (who do not happen to have the condition), and after that, a documentary film became possible. The team knew a documentary film would be what speaks the best and the deepest to the widest range of people, both with and without Cerebral Palsy.
Today, after years of agonising pre-production, we have closed our preliminary stages and are gathering footage and attending wonderful events. There are so many baffling questions to answer, and apparently, since nothing like this has been made before, our film team are the ones who have to answer them.
We didn't expect to have to lead this charge in to a very medically "new" (but actually not new at all) sector of the Cerebral Palsy population. We did not know we would have to lead it. But now we know it is, in fact, up to us. And we will make it work. We will lead — and perhaps millions of Spastic CP adults worldwide will want to start doing the same, and a movement will grow.
But we start with this film.